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Brett is very sick . he has chronic renal failure and had been on dialysis for 2 and 1/2 years . he has been suffering with intermittent vomiting and diarrhea for 8 months now and his blood pressure is thru the roof . we sat for 8 hours waiting , he had a week in john hunter hospital in may , went in with a busting headache and high blood pressure and vomiting for 4 days straight . they done tests , and he came home OK . end of July vomiting for 4 days straight and high blood pressure the specialist and our GP wanted him in john hunter again , so we went down and when we got there they had give Brett’s bed away not once but twice so we said we are going home , they found a bed very quickly after us sitting for 5 hours waiting . no Dr saw him and after being there for 2 days seeing no one only nurses a Dr came in and said you can go home . we said no one has seen him yet they done some test and sent him home the next day . i had to stop a few times on the way home for him to be sick . then he is sick again high blood pressure xrays show enlarged heart can’t stop coughing and has a high temperature and vomiting again , our GP says get to john hunter . well we got there at 3.00pm yesterday we waited and we waited . they said he is being admitted so at 10.00 i headed home all they had to do was take him to the ward , i was back in cessnock and my mobile rang come back and get Brett we are not admitting him .WHAT . so i turned around and went back . Brett is home we got home at 1.30am . still vomiting ,coughing every second high fever and high blood pressure . no one has any answers or will help . he has lost 20kg in 8 months . cant take his medication or eat as all he can do is vomit , but no one will help .
we are not very happy , and i am scared . he is so sick .
hello
brett’s health has been very rough lately , had a week in john hunter hospital , he has lots of complications at the moment in his body due to the dialysis and the kidney failure . anemia very badly and no iron now and blood pressure thru the roof .
Saturday 2nd July Brett’s brother mark passed away he was 49 years old . very very sad . so we need to go to port macquarie for the funeral not sure if it will be this week or next week , as there is an ortopsie being done . mark has been very ill lately . but passed away very quickly .
the kids are good , taking brodie to the doctors today as he has a chest infection .
i love the holidays ,
luv to all
hi ,
we are all good . brett went back to the specilist alls good but now he needs to go on a low phosphate diet . i have been unwell the last couple of months and i have had diabetes for 12 months now but now also i have celiacs . so the 4 of us are on low salt , low fat , low phosphate , gluten free diet . wow . it makes life confusing at the moment .
but there is some one worse of than us some where . dialysis is changing as the disease progresses , more medicaion and new stuff to put in the lines while on the machine .
have now been on dialysis for 2 years and just over 12 months on the waiting list for a kidney . but he is coping has his bad days .
luv to all
hi everyone ,
i haven’t been here for a while . life is busy . brodie got his green cord at scouts and then he got the highest award a scout can get . his scout medallion. this is getting presented to him 2nd april at the scout hall . then the 7th of may we go to goverment house and he is awarded a certificate from the govener general . he is now in ventures .
carissa is good she has gone to lone scouts , as tuesday nights she is busy and couldn’t make cessnock meetings . she has been rough lately she burnt her thigh badley . but getting better . she sang at relay for life today with the cessnock schools choir . great .
brett is well . work is busy and diyalsis is busy but going well .
i am good . busy but good .
love to u all . alisa
when i make friends i go all in .some friends are just that but others i feel are just as close as family , and i think of them as family .
the owens , munks ,nealys are close close friends - the tregenzas & watsons are family . i classed the horns as family, but there not happy with me so i think thats gone now.
well i guess thats life . may be time will tell .
chin up lifes not to bad other wise .
love to all
well , the kids are back at school . back to watching the clock . i have to pick the kids up for a few weeks , thought the bus will be a bit hard with crutches . carissa had a good day the kids helped her . she has been on crutshes for 2 weeks , 4 or 5 weeks to go . back to scouts this week as well . we have our term 4 scout disco on friday night . we had a wedding sunday it was a great day . brodie done the music .
brodie has just about finnished all his green stuff for scouts , so he will get his green cord soon . the 23rd of october he is haveing his 2nd attempt at his scout medallion project . we need more public thru . if he can pull it of he will be the first to get the scout medallion for cessnock . fingers crossed .
hope everyone is good , thinking of you all . love alisa
friends and family mean the world to me . carissa has a girl friend lily who i class as part of our family , she has had 2 nights with us this week , it is great to see them together . and brodie has a mate jordan that i class as part of the family . he is here this week aswell . i love to see the kids happy .
brodie is going on his green cord hike tomorrow 30 km ,from congewai to morisett .
alls well love to all .xxxxxx
hi havent been on here for a while . have been really busy . we are all good . brett is in sydney for the long weekend . he is going to the nrl grandfinal . carissa is going good , she is still on crouches . her foot is still sore . brodie is down the paddock with 4 other scouts , they are camping doing badge work for brodies green cord partrol activity . then next week end he is doing his green cord hike 30 kms . i am good . busy .
the kids and i for the first week of the school holidays put in a new vegie garden . it looks great . we allready have some plants in . and waiting on seeds to come up now.
leah has been over for a night and carissa had a night at her house . lily is coming over next week .
life is good but busy , i am enjoying the holidays . love to all
i just want to share my thoughts of a wonderful , caring special family .
there are 2 parents , 7 kids . i feel for them . i wish i could help or do something for them . one of there daughters is part of my own family .they have lots of ups and downs . the other night tiff was sad , i could feel this and felt for her . if i could have a wish for them i would wish for some relief for them and they could have a break . they are a great family , and the hurdales that life has sent them have made them stronger . i feel for tiff and ivy the most . ivy is such a lovely little girl , all our love xxxxxxx and if i can help please ask me .
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